Sacred Caregiving Resources

For caregivers supporting someone with Alzheimer's disease or another life-limiting illness, the most helpful resources typically address five areas: education, practical caregiving, emotional support, legal/financial planning, and end-of-life care.

Here are valuable resources available:

1. Alzheimer's Association

The gold standard for Alzheimer's education and support.

• 24/7 Helpline (800-272-3900)

• Local support groups

• Caregiver training

• Disease progression information

• Safety and behavior management strategies

2. Family Caregiver Alliance

Excellent for caregivers of any chronic or terminal illness.

• Caregiver toolkits

• Self-care resources

• Disease-specific guides

• Family meeting templates

• Stress and burnout prevention

3. National Institute on Aging Alzheimer's Caregiving Center

Evidence-based information from the U.S. government.

• Communication tips

• Managing difficult behaviors

• End-of-life planning

• Safety recommendations

4. AARP Family Caregiving Resource Center

Practical guidance for daily caregiving.

• Caregiver checklists

• Financial planning

• Legal documents

• Long-term care information

5. The Conversation Project

One of the best resources for discussing serious illness and end-of-life wishes.

• Advance care planning guides

• Family conversation starters

• Values-based decision making

6. National Hospice and Palliative Care Organization (NHPCO)

Helps families understand palliative and hospice care.

• Hospice eligibility information

• Symptom management education

• Caregiver support resources

7. CaringBridge

A free platform for updating family and friends.

• Health journals

• Care coordination

• Community support

• Reduces the burden of repeating updates

8. Lotsa Helping Hands

Organizes caregiving tasks among family and friends.

• Meal schedules

• Transportation coordination

• Volunteer sign-ups

• Shared caregiving calendars

9. Area Agency on Aging (Eldercare Locator)

Connects caregivers to local resources.

• Respite care

• Transportation

• Adult day programs

• Benefits counseling

• Home assistance services